Data Management in Health Research Event

Posted on:26 Mar 2024

Cystic Fibrosis Research Award

“You’re funded but are you ready to be FAIR” report

27 March 2024

The Clinical Research Facility-UCC, in partnership with the Irish Data Stewardship Network (Sonraí) launch the final report arising from the Data Management in Health Research symposium hosted in University College Cork last October.

The event aimed to engage key stakeholders drawn from a variety of Research Performing Organisations, the Health Service Executive, Irish health research funders and members of the health research community with updates on health data research developments taking place against a backdrop of open research initiatives.

Structure, speakers and presentations

The event commenced with an address from Dr Aoife Coffee (UCC Library) who outlined the origins of Sonraí and its place within Irish research data stewardship. This was followed by a morning session dominated by structured conversations among attendees who outlined the challenges and solutions to approaching open research from their perspectives.

Prof Helen Whelton, Chief Academic Officer South/Southwest Hospital Group, opened the afternoon series of presentations by emphasising the importance of creating an environment within the health service that fosters promotion of health research through the forum of an Academic Health Sciences System. Dr Maria Quinlan, HSE National Research and Development Unit expanded this point from the perspective of the wider health service.

Initiatives being championed with respect to open science and active research data management were delivered by funder representatives from the Health Research Board (Dr Sharon Kappala) and Science Foundation Ireland (Jenny Clarkin & Edie Davis).

Carole Morris and Terry McLaughlin, Public Health Scotland, closed the symposium by detailing the integration of national health datasets with reproducible analytical pipelines (RAPs). This keynote presentation highlighted the advantages of embracing open research practices alongside adherence to data protection obligations, where the utility of the data is maximised.

The published report seeks to capture the main points that emerged from the days’ conversations.

Please cite as: Brendan Palmer (2024), Data management in health research: You’re funded but are you ready to be FAIR? DOI: 10.17605/OSF.IO/7DEHF.

Find the full report here.

Coronavirus (COVID-19)

In light of the Covid-19 situation, in advance of attending for a scheduled patient visit, please confirm the visit with your research nurse.